To ensure the adoption and implementation of the 10-year intersectoral global action plan on epilepsy and other neurological disorders, the OneNeurology Partnership has sought the support of regional ambassadors to ensure the plan has the support of national governments and parliaments.
- Unite with other organisations/individuals in their regions, jointly identify key national advocacy priorities and together lead a tailored regional advocacy campaign.
- Seek to engage/influence key decision-makers, including national governments and parliaments, to adopt and implement a comprehensive GAP which takes an integrated approach to neurological disorders.
- Liaise with and report back to the OneNeurology Global Partnership.
Meet the OneNeurology Ambassadors below, or learn more about becoming an Ambassador for your region.
Become an Ambassador
We are currently seeking ambassadors to represent the below regions:
- Asia-Pacific (encompasses the countries represented in WHO’s regional offices SEARO and WPRO)
- Eastern Mediterranean (WHO EMRO)
- North America (represents English speaking countries from the North American region)
- Latin America (encompasses all countries represented in WHO’s PAHO regional office, except for the United States of America and Canada)
The selection criteria for current programme participants are based on their preparedness to take national/regional action, to represent the wider neurology community, to engage meaningfully with various stakeholders in their countries, to monitor progress and report back to the OneNeurology Partnership.
Prof. Bindu Menon, India
I am presently the Head of Department and Senior Consultant Neurologist, at Apollo Hospitals, Nellore Andhra Pradesh, India. I founded the Dr. Bindu Menon Foundation in August 2013, which has been instrumental in starting several novel projects for the first time in the country, 1) “Neurology on wheels” a rural-oriented project having covered 31 villages and screened more than 10,000 people for stroke and epilepsy. 2) Epilepsy app “Epilepsy help” for epilepsy patients, 3) Tele awareness Programme18008916977 for epilepsy, stroke and migraine 4) Stroke app “Stroke help”. In the health advocacy campaigns, I have completed 177 free camps, 185 awareness programmes educating more than 35,000 people till date.
My academic journey includes a teaching experience of 20 years, over 100 publications and have written 14 chapters. I have been conferred with the Fellowship’s from the Indian Academy of Neurology, Geriatric society of India, Indian College of physicians, World Stroke Organization, and the Royal college of Physicians, Edinburgh.
I hold several positions – Research committee member of the World Stroke Organization; Asia Oceanic association of Neurology representative of the European Academy of Neurology Scientific Panel on Epilepsy; Special Group EC member, Neuroepidemiology, World Federation of Neurology; Chief Editor- Epilepsy India; Associate Editor, Neurology section, Annals of Medicine; Stroke Support Organisation representative of the WHO South East Asia Region; and life time Network member of NCD Alliance.
I have been a recipient of 37 Awards (International -15; National – 22) which include ILAE Leadership Program Award, and World stroke award among several others.
India is presently undergoing an epidemiological transition from communicable to non-communicable diseases. Neurological disorders rank among the leading contributors to the disease burden. In my “Neurology on Wheels” which travels to the poorly resourced area and follows the motto of We reach, We teach and We treat, I have been a witness to the knowledge, attitude and practice of the population towards neurological diseases and the urban rural health disparity as well.
I would like to reach out to policy makers in the position as an OneNeurology Ambassador to initiate actions at the local level and also to have a global representation. All the challenges in neurological health need pilot interventions and later augmentation by government policy levels with a multidisciplinary team. I would be able to partner with patients and have their voice heard. The advocacy will help in utilising health resources available within the country to meet this burden.
Matilde Leonardi, Italy
Neurologist, Paediatrician, Neonatologist, Child neurologist. Specialized in Bioethics.
Director of Neurology, Public Health, Disability Unit and Coma Research Centre and Director Italian WHO Collaborating Centre-Research Branch at Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.
Member of WHO Functioning and Disability Reference Group, WFNR presidium member, FEAN-Fellow of the European Academy of Neurology, EAN Coma and disorders of consciousness member, EAN International Liaison Group. Co-Chair of the neurological services group of WHO NeuroCOVID Forum. Member of several national and international organizations, in Editorial Board of Journal of Headache and Pain, author of more than 280 publications..
Consultant on neurology policy development, public health, UNCRPD monitoring and disability policy development for several European and extra European Governments.
Developing and carrying out research projects related to burden of diseases, neurology (in particular disorder of consciousness), neurorehabilitation, disability, ageing, chronic non communicable diseases, public health, ICF (WHO’s International Classification of Functioning, Disability and Health) and related instruments.
Corresponding member of the Pontificia Academia Pro Vita and in 2019 nominated Italian Excellence for Research, between the 100 national excellences.
Proudly a OneNeurology Ambassador as it is essential to widespread the need for most countries to invest in the development of neurological health care at policies, systems and services levels in primary, secondary and tertiary care and thus in health personnel, education and research and to support the development of infrastructures useful for research and care.
Jennifer Camaradou, United Kingdom/Greece
Jennifer Camaradou has 18+ years commercial experience working in policy, stakeholder engagement, partnerships, project management and start-up roles across the UK and EU. Jennifer holds an LLB Hons Law with European Study from Exeter university and an MSc in Psychology from Plymouth university. Jennifer trained legally and worked as a lobbyist for Thomsonreuters news before getting involved with start-ups including raising series A private equity.
Jennifer was diagnosed with a genetic condition following an accident and is now an alumni of EURORDIS (an organisation that represents the voice of rare disease patients in Europe) and a EUPATI Fellow (the European Patients Academy on Therapeutic innovation).
She is an active member of several different health activities including being a lay expert on the UK NICE Covid expert panel and member of the global horizon scanning panel for COVID-END Evidence synthesis network.
Jennifer holds various advisory board level roles incl. QResearch at Oxford, the NIHR AI Award and MRC Advanced Pain Discovery Platform, as well as being a peer reviewer for EU and UK funders and has an emerging interest in applied health research and behavioural science.
Jennifer works as a freelance grant bid writer, supporting start-ups and higher education bodies in acquiring funding to commercialise research as well as in patient engagement and public involvement for university and industry clients. She is a doctoral 2022/23 candidate.
Jennifer joined the OneNeurology Partnership in order to better raise awareness and promote the interests of patients with autonomic nervous system disorders. POTS, Postural Orthostatic Tachycardia is one such condition that needs a translational approach and represents an unmet clinical need with no real cure now being seen in many patients with Post Covid Sequale. Her number 1 priority for OneNeurology would be to embed patient centric innovation that better aligns PROs with CROs with patient experience at the core of every decision-making system and to ensure more equitable health care coverage across the EU and beyond.
Dr. Nirmal Surya, India
Dr. Nirmal Surya (M.D., D.N.B, FIAN, MNAMS, FRCP, London) is a Hon. Ass. professor in Neurology at Bombay Hospital & Research centre and Hon. Neurophysician Saifee hospital, Mumbai. He is also Honorary Neurologist to Maharashtra Police
Dr. Surya is the Chairman of Surya Neuro Centre and Founder Trustee and Chairman of Epilepsy Foundation India, which is a not-for-profit organisation working for the cause of epileptic patients in India.
The few positions Dr. Surya holds on the academic front are as follows:
- President Elect, Asian Oceanian Society of Neurorehabilitation
- Member at Large of Presidium of WFNR (2020-2022)
- Chair for Special Interest Group (SIG) on developing world forum of WFNR
- Regional Vice president, (South Asia) of WFNR (World Federation of Neurological Rehabilitation),
- (Founder) President, Indian Federation of Neuro Rehabilitation (IFNR)
- President, Indian Academy of Neurology
- Executive Member, Indian Stroke Association (2018-2021)
- Member, Program committee, 9th World Congress in Neurorehabilitation, May 2016, Philadelphia & 11th WCNR, Oct 2020, Lyon, France
- Past President of Bombay Neurosciences Association (BNA) and Maharashtra Association of Neurology (MAN)
- President, 10th World Congress in Neuro-Rehabilitation (WCNR 2018), Mumbai, India 07th – 10th Feb 2018.
- Member, Digital Strategy Subcommittee, AAN
- Member of Editorial board of Saudi journal of Disability and Rehabilitation, Pakistan Journal of Neurosciences, was on editorial board of Indian Journal of Paediatric Neurosciences and Indian Clinical update hand book, EC Neuro & others., was Guest Editor of Saudi Journal of Disability and Rehabilitation April 2004 issue, review editor for Frontier in Rehabilitation Science.
- Chapters in text books on Neurology and reviews on Neurology
Beside these Dr. Surya has received many awards (including Kenneth M VisteJr, MD patient Advocacy of the year Award by AAN) and delivered many orations in India and across world in various capacities.
Marijeta Mojasevic, Montenegro
I was educated in Montenegro, at University of Montenegro, Faculty of Political Science/Department Social Policy and Social Work, Podgorica, to become a social worker. I gained my BSc degree in 2011, and since 2020 I am studying at the same Faculty and Department, to become MSc.
Since 2013 I am working different jobs, none of them is connected directly with neurological disorder, but the last is indirectly. Since 2015, I am covering a position of Youth Advisor at local Youth Office in Montenegro, and since 2016 I have frequent workshops with elementary, high school and student population on the topic “Life with disability”, as a stroke survivor. My workshops showed that young people are ready to listen, understand and fight prejudices toward people with disabilities, so I would love to share this practice in whole of Montenegro and neighbouring countries too.
Since January 2021 I own a certificate of acquired national professional qualification of a youth activist.
From my volunteering engagements I would share:
- 2020: Active member of NGO Initiative of Youth with Disabilities of Boka/I MI Boke;
- 2019 September – present: Rapporteur on Mainstreaming Disability Issues at Advisory Council on Youth of Council of Europe;
- 2019 July – 2020 December: member of the sub-group ‘EU indicators in the youth field’ under the ‘Expert group in the youth policy field’, representing ENIL, Brussels, Belgium;
- 2017 September – present: member of ENIL’s (European Network on Independent Living) Youth Network Board;
- 2013 March- October: Columnist at DayLine.info – first Croatian independent internet newspapers;
And research experience:
- 2021 March – April: Author of Policy Brief “Analysis of gender responsive budgeting in the field of employment of women with disabilities”, NGO Initiative of Youth with Disabilities of Boka;
- 2019 October – November: Co-author of Local action plan on youth 2020-2021, Municipality of Berane, Montenegro;
- 2014 September – October: Co-author in Association of Youth with Disabilities of Montenegro’s study on the problem of service of personal assistance in Montenegro: “Personal assistance-key for independent living”;
- 2011 November – December: Co-author in Institute of Social Inclusion’s study on the problem of begging Roma population in Montenegro:”Crisis of welfare state: (Not) suppressing begging of children in Montenegro”;
Some of my international experiences:
- 2020 February: Moderator and speaker at Zero project conference of Inclusive Education, Vienna, Austria;
- 2019 October: Freedom Drive, ENIL, Belgium;
- 2018 November: ‘Patient Advocacy in the Digital World’ workshop, EFNA, Brussels, Belgium;
- 2018 February 21: Speaker at “How can the EU #MakeWorkWork for Young People affected by brain, mind and pain conditions”, Brussels, Belgium;
I am ready to live a life without prejudices – how about you?
Muthoni Gichu, Nairobi
Muthoni received her medical school training from the University of Nairobi, Kenya.
She received a master’s degree in gerontology from the University of Southampton, UK in 2018 and Sports and Exercise science from Kenyatta University in 2019.
Muthoni works with the Ministry of Health as the head of Division of Geriatric Medicine.
Rosita Sunna, Australia
Rosita has 20+ years commercial experience working in marketing, engagement, development, management, communication, start-up and has held leadership positions in companies and not-for-profit organisations including the Tourette Syndrome Association of Australia. She holds a Bachelor Professional of Marketing (CCI) and Bachelor Professional of Wholesale & Foreign Trade (CCI) from Germany and is a Certified Professional in Digital Marketing and Fundraising.
Her passion for advocacy of neurological disorders was born 15 years ago, when her son was diagnosed with Tourette Syndrome (TS) and other coexisting neurological disorders. Her volunteer experiences include being a TS Support Group Leader and Phone Volunteer for over seven years. Her lived experience and the shared stories of people touched by TS and other coexisting disorders has given her a deep understanding of the challenges people living with neurological disorders experience. She understands the complexity a neurological condition can present.
Her areas of interest are disability and mental health, and she passionately works to make a difference in these areas. She is a founding member of “Tics and Tourette across the Globe (TTAG)”, an international TS umbrella organisation. She works as Executive Officer for the Australian Clinical Psychology Association (ACPA) and in her own business as consultant for not-for-profit organisations.
Rosita embraces cultural diversity. Rosita lives in Australia and has lived in Germany and Italy.
Rosita joined OneNeurology Partnership as Ambassador to raise awareness and understanding, change negative perceptions, create opportunities and to help people with neurological disorders to live their best lives. She believes in collaboration and is excited to work with an international team to make neurology a global health priority.
Prof. Rajinder K Dhamija, India
Director, Institute of Human behaviour and Allied Sciences, New Delhi, India
Formerly Professor and Head of Neurology Department, Lady Hardinge Medical College and SSK Hospital, New Delhi ,India
- 33rd S Radhakrishnan National Teacher Award 2017
WHO Fellowship, Commonwealth Staff Academic Fellowship
BC Bansal Uma Bansal Oration
WHO expert: Parkinson’s Disease Rehabilitation
Magdalen Rogers is the Executive Director with the Neurological Alliance of Ireland.
The Neurological Alliance of Ireland (NAI) brings together 30 non-profit organisations to advocate for the rights of 800,000 people in Ireland living with a neurological condition.
Founded in 2003, the NAI advocates for the development of quality services for people with neurological conditions. Our campaigns are rooted in the experience of our members and the people and families with whom they work. We provide a united and expert voice on neurological care through research, advocacy, policy development, and education.
The NAI is a committed supporter of the #OneNeurology campaign, recognising the need for all stakeholders to work together around collective advocacy on behalf of people with neurological conditions. It through our working together that we can make neurology a global health priority.
Professor Riadh Gouider, Tunisia
Prof Riadh Gouider is Professor of Neurology and Head of Neurology Department since 2002, head of the Alzheimer’s center and the MS center at Razi University hospital. Since 2018, he is the “President of the Tunisian College of Neurology and Neurosurgery”.
Prof Gouider served in several International, Regional and national positions:
Positions in the World Health Organization (WHO):
- Member in the Global Dementia Observatory since 2015
- Member of the “Technical Advisory Group (TAG) since 2013
Positions in International Professional Organizations:
- Member of the steering Committee of the International Parkinson Disease Genomics Consortium Africa (Since 2020)
- Member of the EAN Task Force on Gender and Diversity issues in Neurology (Since 2020)
- Fellow of the American Academy of Neurology (Since 2019)
- Fellow of the European Academy of Neurology (Since 2018)
- Member of the EAN Neurology and Africa Task Force (Since 2011)
Positions in the World Federation of Neurology (WFN):
- Co-opted Trustee (Since 2022)
- Co-chair of the Education Committee (Since 2022)
- Member of the Specialty Group on Rare Neurological Diseases (RND) (Since 2020)
- Elected Trustee (2014-2020)
- Regional Director Africa (2012-2015)
- Regional Director Pan-Arab region (2008-2010)
- WFN Delegate for the Tunisian Society of Neurology (2005-2014)
Positions in Regional Professional Organizations:
- Founding member and honorary member of the Board of the African Academy of Neurology (AFAN)(Since 2015)
- President of Pan African Association of Neurological Sciences (PAANS) (2014-2016)
- Vice President of the Middle East and North Africa Committee for Treatment and Research in Multiple Sclerosis (MENACTRIMS) (Since 2013)
- Honorary President of the Pan Arab Union of Neurological Societies (PAUNS) (Since 2013)
- President, Pan Arab Union of Neurological Societies (PAUNS) (2007-2010)
Positions in National Professional Organizations:
- Representative of the Tunisian Association of Multiple Sclerosis Patients (ATSEP) on the MSIF Medical-Scientific Council (Since 2022)
- President of the Tunisian College of Neurology and Neurosurgery (Since 2018)
- Chairman, Advisory board, National Plan “Alzheimer’s and related diseases”(Since 2016)
- President of the Scientific Committee of the ATSEP (Since 2014)
- President, Tunisian Society of Neurology (2014-2018)
- President, Scientific Committee of the Tunisian Association of Alzheimer’s Disease (Since 2010)
Prof Gouider received several awards from International Societies: AAN Foreign Scholarship Award on 1994, EAN Special Service Award on 2018, PAUNS Award (WCN Dubai, UAE) in 2019.
He authored and co-authored more than 200 original papers and book chapters.
“Brain health is a major public health challenge worldwide and the reason why structured advocacy has become an essential element for the sake of patients.
With my passion to the field of advocacy, I am certain that joining OneNeurology, with well thought objectives; concrete goals and an explicit message will make this project of joint advocacy possible.
Being a OneNeurology Ambassador will be a strongly enriching experience and it will allow me continue to contribute to and promote my goals at a regional level.
Advocating together is essential to convince stakeholders to consider neurological diseases as a public health concern.”
Prof. Mayowa Ojo Owolabi
Experienced Professor with a demonstrated track record of outstanding research. Skilled in Clinical Research, Stroke, Medical Education, Epidemiology, Neurology, Neuro-rehabilitation,Global Stroke control program, and Life Sciences. Fellow of the American Academy of Neurology, and Fellow of the Academy of Science (Nigeria).
Dr. Ramla K.M., India
I am a Neuro Developmental Paediatrician trained in India and the UK, with over 20 years of experience in the fields of Paediatrics and Paediatric Neuro Disability . (M.B.B.S, DCH, MRCPCH, Msc -PND (UK), MD (AM)FCIP)
- Currently developing ‘Amal’ – Neuro Developmental centres, in collaboration with Ummeed.
- Vice President – Al Ameen Educational Trust
- Founder member and Vice President of HEE ( Health Education Environment ) project.
The project focuses on Education (especially for the under privileged), Climate change and Brain and Mind health (the main focus being on diet, exercise- both physical and mental including meditation and healthy sleep- “as every brain is different but is ultimately the same”.
Raising awareness and eradicating stigma, isolation and discrimination of those affected by Neuro Developmental Disorders is also one of the main aims. Currently, thirty three schools in the Nilgiris support this project. More to follow.
- One of the founder members of ‘We can help’ project, which focuses on education and empowerment of the under privileged.
- In addition, I link with some hospitals with regards to PND. My approach is holistic.
I am a member of the following organisations
- RCPCH (Royal College of Paediatrics and Child Health)
- BACCH ( British Association for Community Child Health)
- BACD (British Association of Childhood Disability)
- And Us Engagement collaborative member
- CPSIG (Child Protection Special Interest Group member)
- Consultation panel member of the RCPCH Research and Evidence team and Clinical Standards team
My primary rationale for participation and engagement with One Neurology
The human brain is one of the most complex systems in the universe and still remains one of the unsolved mysteries. With advances in the fields of medical technology and genetics, we are slowly beginning to unravel it’s secrets and thereby the physiological functions and pathological processes of just not the brain but also other parts of the body that are intricately linked with it. I have always been in awe of this magnificent organ.
Neurological disorders are rising at an alarming rate. Nearly 1 in 8 children are suffering from a Neuro Developmental Disorder. The resilience of the adult nervous system is markedly affected by the environment and circumstances during child development. Neurological disorders in childhood, whether of intelligence or of brain disease can have a significant impact on adult Neurological and Mental health. Indeed, childhood factors can result in adult onset Neurological disorders such as Dementia, Parkinsonism etc. This silent pandemic should be addressed and a clear picture of the neurological disorders and it’s burden should be sought. Promotion, Prevention and Protection should be the aim and we should ensure that health professionals, governments and the public be involved in this.
Together, with a single voice, endorsing the objectives and promoting the aims of ‘One Neurology’ and turning it’s principles into actions, we can save millions of lives.
Together, we turn hope into reality.
The One Voice for Neurology podcast explores why it’s time to make neurology a global priority and what that could mean for those living with a neurological disorder.
In a series of thought-leadership pieces, partners and supporters of the OneNeurology Initiative share their views on brain health and neurology.
Download OneNeurology resources including infographics and fact-sheets to support your neurology advocacy efforts.