We are delighted that One Neurology ambassador and executive director of The MOG Project, Julie Lefelar will be representing the patients perspective at the UN General Assembly Science Summit in New York this week. The session, titled “Community perspectives and addressing the challenges… together?”, is hosted by the OneNeurology partner – the EBC and aims to guide national, regional, and global policymakers towards better addressing brain health in the future, particularly as they prepare for the post-Sustainable Development Goals era during the Summit of the Future 2024 and the High-Level Conference on the UN NCD Strategy 2025.
Julie is a rare neurology patient advocate who brings a wealth of experience and passion for patient representation to the panel.
“With MOG Antibody Disease being a new and rare disease where the landscape is ever changing as researchers scramble for understanding, MOGAD patients require special support from an organized global community of policy makers at all levels. UNGA78 is an important opportunity for us to speak about the challenges we as MOGAD patients face in finding knowledgeable doctors and gaining access to medicines that control our disease, as well as how policymakers can work together to improve lives. I look forward to providing a voice for the MOGAD community where great minds are brought together to ensure that attention is given to MOGAD and other brain disorders.”
If you would like to watch the session it will be streamed live by the EBC on their LinkedIn events page on the 18th of September from 9:45 – 10:30am EDT. Watch the stream live on LinkedIn.