Under the OneNeurology Partnership, international neurological organisations and regional umbrellas are uniting to make neurology a global public health priority. It is a multi-stakeholder, patient-focused partnership which aims to strengthen neurology-related groups to stimulate collaborative advocacy, action and accountability for the prevention, treatment and management of neurological disorders worldwide.
For more information on the Partnership and how to get involved, take a look at our extensive Q&A.
- Unite the neurology community to address fragmentation in the field and stimulate collaboration in areas of mutual interest – centralising the patient voice in a multi-stakeholder partnership.
- Lead global advocacy by pooling resources and expertise to optimise efficiency and effectiveness in our joint and individual actions.
- Create a favourable policy environment for action on neurology, providing a platform for disease specific advocacy efforts.
- Position neurology as a focus area within broader efforts on brain health, NCDs and other thematic policy initiatives of relevance.
- Hold policy makers accountable for implementation of political commitments, resourcing and results.
- Strengthen the advocacy capacity of neurology organisations and alliances at all levels.
- Share knowledge on evidence-based interventions in neurology; supporting the scaling up of solutions and best practice in the field.
- Carry out any activity in support of its mission including programmes, projects, initiatives, campaigns, training, publications, events and others.
Partners:
Chairs:
Donna Walsh,
Chair
Donna Walsh joined the International Bureau for Epilepsy [IBE] as Chief Executive Officer in January 2022. Since her appointment she has been responsible for overseeing the new strategic direction of IBE and, with a newly hired team, is working to ensure IBE empowers and amplifies the voices of people with epilepsy globally. Prior to her role with IBE, Donna worked as Executive Director of the European Federation of Neurological Associations (EFNA) for 10 years. She has been active in representing the neurology patient community throughout her career, including as a board member of the European Brain Council, a member of the European Affairs Sub-Committee at the European Academy of Neurology and as a member of the World Health Organization’s NeuroCovid Global Forum. Donna has also moderated and chaired many events and has shared patient insights at high-level conferences and meetings at institutions such as the World Health Organisation and European Parliament.
Coriene Catsman-Berrevoets,
Vice-Chair
Coriene Catsman-Berrevoets trained as a neurologist and subsequently as a paediatric neurologist at the Erasmus University (Hospital) Rotterdam, the Netherlands. She was a board member of the European Paediatric Neurology Society [EPNS] from 2014, Chair of the EPNS Education and Training Committee, Chair of the Committee of National Advisors to EPNS and the Training Advisory Board until 2022 and is now an honorary member of the society. She also serves as the EPNS representative to OneNeurology. Coriene was a staff member of the department of Neurology of the ErasmusMC, Rotterdam since 1982 and was associate professor and head of its department of Paediatric Neurology until her retirement in December 2019. She worked as a paediatric neurologist in the Juliana Children’s Hospital in the Hague in 2020-21. She served on the board of the Dutch Society of Paediatric Neurology from 1995 and from 2004-2010 as President and was Chair of the Posterior Fossa Society from 2016-2018.
Coriene’s main research interests are acquired brain injury and its longterm neurocognitive sequelae in children.
Secretariat:
Secretariat and strategic leadership of the OneNeurology Partnership is provided by the European Federation of Neurological Associations (EFNA). EFNA coordinate OneNeurology events and policy meetings, as well as the initiative’s advocacy and communications activities.
Endorsers:
- NCD Alliance
- International Brain Tumour Alliance (IBTA)
- International Society of Neuroimmunology – ISNI
- Healthy Brains Global Initiative
- LivedHealth.org
- World Federation of Incontinence and Pelvic Problems – WFIPP
- Tics and Tourettes Across the Globe (TTAG)
- European Alliance for Patient Access
- European Pain Federation (EFIC)
- European Migraine and Headache Alliance (EMHA)
- European Parkinson’s Disease Association (EPDA)
- European Society of Neurosonology and Cerebral Hemodynamics (ESNCH)
- EARLS – European Alliance for Restless Legs Syndrome
- European Huntington Association
- European CMT Federation
- ERN EURO-NMD
- Women’s Parkinson’s Project
- Dystonia Europe
- European Myasthenia Gravis Association
- Neurological Alliance of Ireland
- Greek Federation of Alzheimer’s Disease
- Alzheimers & Dementia Organisation Kenya
- Rigshospitalet, Department of Neurology, Denmark
- Huntington Liga, Belgium
- Migraine Association of Ireland
- Association of Patients with Neurodegenerative Conditions, Romania
- RLS e.V. Deutsche Restless Legs Vereinigung, Germany
- Fundacion Ciencia y Tecnologia (Fundacyt), Colombia
- Asociación Española de Síndrome de Piernas Inquietas
- Fundación de Neurociencias
- Myeloma Euronet (Romania)
- Belgian Brain Council
- Neuro Move CMT Association (Romania)
- RLS-UK/Ekbom Syndrome Association (UK)
- RIMS (Rehabilitation in MS)
- Belgian ME Association
- ADHD Ireland
- RLS-Förbundet (Sweden)
- Sociedad Española de Neurología Pediátrica (SENEP) (Spain)
- Amal India
- Stichting Restless Legs, Netherlands
- EBRAINS, Belgium
- Rare Diseases Foundation of Iran (RADOIR)
Ambassadors:
- Prof. Bindu Menon, India
- Matilde Leonardi, Italy
- Jennifer Camaradou, UK/Greece
- Dr. Nirmal Surya, India
- Marijeta Mojasevic, Montenegro
- Julie Lefelar, United States
- Wayne Feng, United States
- Muthoni Gichu, Kenya
- Mayowa Ojo Owolabi, Nigeria
- Rosita Sunna, Australia
- Dr. Ramla KM, India
- Rajinder K Dhamija, India
- Asif Khan, Pakistan
- Riadh Gouider, Tunisia
- Magdalen Rogers, Ireland
- Veerle Cornelia Aertsen, Belgium
Supporters:
“Alzheimer’s Disease International is delighted to be joining this important and timely partnership, sharing commonalities, insight and group advocacy strength.”
Paola Barbarino, CEO, Alzheimer's Disease International“90% of strokes are associated with a small number of known, modifiable risk factors which are shared with other non-communicable diseases, including dementia. There is a massive public health policy opportunity which we can’t afford to miss. This is why, as part of our effort to accelerate action on stroke prevention and to ensure equitable access to quality stroke care, the World Stroke Organization is proud to be part of the OneNeurology Initiative.”
Professor Valery Feigin, Executive Committee member and Co-Chair of the Global Policy Committee, World Stroke Organization“The Women’s Brain Project is delighted to join forces with our colleagues worldwide in the OneNeurology Initiative. We hope through our participation to promote greater understanding of sex and gender differences across the spectrum of neurological diseases.”
Maria Teresa Ferretti, PhD, Co-founder and Chief Scientific Officer at Women's Brain Project“EAN has joined the OneNeurology Partnership because as a scientific society we want to share our conviction that the general neurologist is of primary importance in health care for neurological patients irrespective of their particular disease worldwide. For instance: current preventive measures (diet, motor / cognitive exercise, sleep) have often favorable effects on several neurological disorders (e.g. stroke, dementia) and the care of chronic neurological disorders face similar challenges and opportunities, independent from the specific underlying etiology.”
Professor Claudio Bassetti, President, European Academy of Neurology“From advocacy, to capacity-building, to awareness raising – we want to demonstrate what makes all neurological disorders one and what’s in it for the community and wider society if they are all addressed together, in addition to disease specific advocacy activities.”
Joke Jaarsma, President, European Federation of Neurological Associations“Due to the staggering burden of brain disorders – neurological and mental alike – and their related comorbidities, there is an urgent need to transform awareness into concrete action and this is why EBC supports the OneNeurology Partnership.”
Prof Monica Di Luca, President, European Brain CouncilInterested in becoming a Partner or Endorser of this initiative?
Any organisation, network or entity substantially engaged in neurology advocacy can join the OneNeurology Partnership, either as a Partner or an Endorser.
Partners
Partners must be international organisations, but can also be regional neurology groups if multinational and non disease-specific.
Endorsers
All other groups are invited to join us as Endorsers – groups who share the objectives of our Partnership. Endorsers will be listed on the website, receive regular updates and will be invited to join open meetings and workshops.
Note: Endorsement is not open to individuals.
If you would like any further information on becoming a Partner/Endorser of the OneNeurology Initiative please contact us here.
